ABOUT US | Sussex EDS & HSD

Sussex Ehlers-Danlos Syndromes Hypermobility Community Group

We actively support people of all ages with Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) across Sussex in leading more fulfilled lives, with support online and face to face providing EDS/HSD activities, accessing therapies, hobbies and events raising awareness, understanding and knowledge for people with diagnosis or symptomatic of the disorders and in the wider community.

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Fundraising support

We are very grateful to the fundraising support we have had from The National Lottery, Axis, Healthwatch West Sussex, The Longley Trust, Waitrose community matters, Coop Local Giving , East Grinstead Lions, Meridian Rotary, the Sussex Community Foundation, Sussex Police via Property Act Fund and Magic Little Grant from Localgiving, in partnership with Postcode Community Trust.

Media support

We also thank local Radio stations BBC Sussex, Meridian FM, Suzy Radio, Crawley News24, BBC South TV, BBC South East, Spirit FM, Crawley Observer, East Grinstead Gazette, Mid Sussex Times, West Sussex County Times and Horsham District Post.