Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us - admin@infosussexeds.org.uk

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Sussex Ehlers-Danlos Syndromes Hypermobility Community Group

We are a local voluntary community group who actively support people of all ages with EDS/HSD across Sussex in leading more fulfilled lives, with support online and face to face, signposting and providing EDS/HSD activities, hobbies and holding events raising local awareness.

Fundraising support
We are very grateful to the fundraising support we have had from Healthwatch West Sussex, The Longley Trust, Waitrose community matters, East Grinstead Lions, the Sussex Community Foundation and Magic Little Grant from Localgiving, in partnership with Postcode Community Trust. 
Media support
We also thank local Radio stations BBC Sussex, Meridian FM, BBC South TV, BBC South East, Crawley Observer, East Grinstead Gazette, Mid Sussex Times, West Sussex County Times and Horsham District Post.