<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[SEDSConnective]]></title><description><![CDATA[Foremost charity for hypermobility and neurodivergence ]]></description><link>https://www.sedsconnective.org/blog</link><generator>RSS for Node</generator><lastBuildDate>Thu, 23 Jul 2026 03:21:38 GMT</lastBuildDate><atom:link href="https://www.sussexeds.com/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Neurodivergence in Radiography: Why Language Affects Patient Safety and Physical Health]]></title><description><![CDATA[The Role of Language in Shaping Cultural Perceptions Within Healthcare and Supporting Neurodivergent People's Well-being and Access to Care: Focus on Autistic Experiences  Potts, B., Parish, C.J., Ukaji, N.F., Pavlopoulou, G., Karaminis, T., Lane, M., McStravick, J., O'Brien, M., Harvey-Lloyd, J., Shephard, S., Green, J., Collis, A., Stogiannos, N., Skelton, E. and Malamateniou, C. (2026), The Role of Language in Shaping Cultural Perceptions Within Healthcare and Supporting Neurodivergent...]]></description><link>https://www.sedsconnective.org/post/neurodivergence-in-radiography-why-language-affects-patient-safety-and-physical-health</link><guid isPermaLink="false">6a15921eb3f40ff4eeebbb0b</guid><category><![CDATA[Featured Research]]></category><pubDate>Tue, 26 May 2026 13:00:47 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dd02b8_d8b14efd9f374ee3b3412d15054b1ba0~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[SEDSConnective celebrates brain-body connections on 5th May through “Hypermobility Neurodivergence Day” ]]></title><description><![CDATA[The new awareness day is created to join the dots between physical and mental health  Sussex, UK – 30th April 2026: SEDSConnective, a user-led charity uniquely focused on supporting individuals with hypermobility (Ehlers-Danlos syndromes/EDS and associated conditions) and neurodivergence (such as autism, ADHD dyspraxia, Tourette’s and dyslexia) has launched “Hypermobility Neurodivergence Day” on May 5th due to lack of awareness of the brain and body conditions amongst the society and the...]]></description><link>https://www.sedsconnective.org/post/sedsconnective-celebrates-brain-body-connections-on-5th-may-through-hypermobility-neurodivergence-d</link><guid isPermaLink="false">6a0e092d96905735bfe74055</guid><category><![CDATA[Press Release]]></category><pubDate>Wed, 20 May 2026 19:22:18 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/d1bac5_fba772328f224cb691b1fefac7540a55~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Hypermobility Physical/Mental health challenges in neurodivergent children and young people!]]></title><description><![CDATA[Illustration of human connected network of dots and links in yellow and blue covering body and brain.  SEDSConnective logo A research summary published by The Chartered College of Teaching based on the peer reviewed paper Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People (1) It is very relevant now to the SEND Education Proposals and responses, the medical guidance and the categories for complex SEND. SEDSConnective are making a response and you can to do...]]></description><link>https://www.sedsconnective.org/post/hypermobility-physical-mental-health-challenges-in-neurodivergent-children-and-young-people</link><guid isPermaLink="false">6a082f3f90efca42974f3ea5</guid><pubDate>Sat, 16 May 2026 21:06:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dd02b8_dc3de5b3d84e46eeaff5a4c1c1ced120~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Living with Dyslexia: From Struggles in School to a Career in Tech ]]></title><description><![CDATA[The school system at the time was not supportive. I was kept back for a few years and, because I was always struggling, I believed I was stupid. I became a quiet child who kept to myself]]></description><link>https://www.sedsconnective.org/post/living-with-dyslexia-from-struggles-in-school-to-a-career-in-tech</link><guid isPermaLink="false">69c91ef4af19906fa179eef5</guid><category><![CDATA[Community]]></category><category><![CDATA[dyslexia]]></category><pubDate>Wed, 01 Apr 2026 19:57:28 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/1746f4_c3dbf4a8424c4f12b5f6e3a9e9a35598~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[What is RSD (Rejection Sensitive Dysphoria)?]]></title><description><![CDATA[Many people living with neurodivergent conditions describe experiencing extremely intense emotional reactions to criticism, rejection, or perceived disapproval. This experience is often referred to as Rejection Sensitive Dysphoria (RSD) . Although RSD is not currently a formal medical diagnosis, the term is widely used in neurodivergent communities to describe a pattern of severe emotional pain triggered by perceived rejection or criticism. It is particularly common among people with...]]></description><link>https://www.sedsconnective.org/post/rsd-rejection-sensitive-dysphoria</link><guid isPermaLink="false">69b844d8da52b219c85ff12e</guid><category><![CDATA[neurodivergence]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[ADHD]]></category><category><![CDATA[Education]]></category><pubDate>Mon, 16 Mar 2026 18:23:57 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/1746f4_402c3031c264438f890db0c52e2e9e55~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Rare or Rarely Diagnosed: Ehlers-Danlos Syndromes, Hypermobility, and Neurodivergence]]></title><description><![CDATA[EDS, hypermobility, and neurodivergence are often rarely diagnosed. Discover why awareness, proper diagnosis, and robust data are vital for children and adults alike.]]></description><link>https://www.sedsconnective.org/post/rare-or-rarely-diagnosed-ehlers-danlos-syndromes-hypermobility-and-neurodivergence</link><guid isPermaLink="false">69a21e8c4882ec6a3ac39267</guid><category><![CDATA[Latest News]]></category><category><![CDATA[neurodivergence]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[Autism]]></category><category><![CDATA[ADHD]]></category><category><![CDATA[Neurodivergent]]></category><pubDate>Fri, 27 Feb 2026 23:47:37 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dd02b8_5a417a68f67047d19eb7f209c9a3e78d~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Bipolar Disorder, Hypermobility and Neurodivergence: The Missing Connection ]]></title><description><![CDATA[New research reveals surprising links between bipolar disorder, joint hypermobility, autism and ADHD. Learn why integrated healthcare matters.]]></description><link>https://www.sedsconnective.org/post/bipolar-hypermobility-neurodivergence</link><guid isPermaLink="false">697cfb95afd4a3da350d2d37</guid><category><![CDATA[Latest News]]></category><category><![CDATA[Research]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[Featured Research]]></category><category><![CDATA[Autism]]></category><category><![CDATA[Neurodivergent]]></category><category><![CDATA[Bipolar]]></category><pubDate>Mon, 02 Feb 2026 19:44:55 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/1746f4_37819bfff3bf47779a05154b86f9bcef~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Pain, Autism and Hypermobility    ]]></title><description><![CDATA[Pain is more complex than many of first think about ]]></description><link>https://www.sedsconnective.org/post/pain-autism-and-hypermobility</link><guid isPermaLink="false">695a65fcb5397a67af4813b3</guid><pubDate>Sun, 04 Jan 2026 13:24:49 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/afe192_1d46041e4dd34ee2aaec65ca484c03b7~mv2.jpeg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Understanding Interoception: The Mind-Body Connection]]></title><description><![CDATA[Researchers are increasingly documenting strong connections between hypermobility, autonomic dysfunction (postural tachycardia syndrome (POTS Othostatic Intolerance TS) and neurodivergence, including autism and ADHD.]]></description><link>https://www.sedsconnective.org/post/interoception-body-brain-health-and-neurodivergence-sedsconnective-in-scientific-american</link><guid isPermaLink="false">694682e1238be523262d3cc9</guid><pubDate>Sat, 20 Dec 2025 13:16:04 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_c3352bd0a8bb405091f17f1fe7559277~mv2.png/v1/fit/w_909,h_635,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[An In-Depth Analysis of the 5th SEND Report: Ensuring Complex Needs Are Not Overlooked]]></title><description><![CDATA[The SEND system is under strain, and children with complex needs are being left behind. We break down what the 5th Report says, why SEDSConnective submitted evidence, and how our community’s experiences can help drive real change.]]></description><link>https://www.sedsconnective.org/post/written-evidence-send-crisis</link><guid isPermaLink="false">6916214aaaec0534d8854c97</guid><category><![CDATA[Latest News]]></category><category><![CDATA[Community]]></category><category><![CDATA[Research]]></category><category><![CDATA[neurodivergence]]></category><category><![CDATA[Education]]></category><pubDate>Mon, 17 Nov 2025 21:48:04 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_b9c91c7049bb4ecdb1e1048b192fa325~mv2.jpg/v1/fit/w_500,h_158,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Why Autism policy must address hypermobility EDS, Autism ACT 2009: Response to Government Committee ]]></title><description><![CDATA[Autism policy must recognise the body-brain connection. Physical pain, fatigue, and hypermobility in autistic people are often dismissed as behaviour, causing harm and misdiagnosis. Learn why integrated health policy is critical."]]></description><link>https://www.sedsconnective.org/post/autism-policy-bodybrain-hypermobility</link><guid isPermaLink="false">6910ea156d12760ab2374b17</guid><category><![CDATA[Press Release]]></category><category><![CDATA[Latest News]]></category><category><![CDATA[neurodivergence]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[ADHD]]></category><category><![CDATA[Education]]></category><category><![CDATA[school]]></category><category><![CDATA[medical]]></category><category><![CDATA[EDS]]></category><category><![CDATA[HSD]]></category><pubDate>Thu, 13 Nov 2025 11:47:39 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/1746f4_6bf1fa2ec62a455ebad3bf7a2470c04f~mv2.png/v1/fit/w_782,h_322,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[How Hypermobility, EDS and Lyme Disease Connect]]></title><description><![CDATA[Recent research shows that people with connective tissue disorders face a higher risk of infections, slower healing and lingering inflammation, meaning diagnoses can be easily missed or delayed. ]]></description><link>https://www.sedsconnective.org/post/how-chronic-pain-and-hypermobile-eds-heds-can-mask-lyme-disease</link><guid isPermaLink="false">690b3c2e96a2942ab278b210</guid><category><![CDATA[Stories]]></category><category><![CDATA[health]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[Allergy]]></category><category><![CDATA[medical]]></category><category><![CDATA[diagnosis]]></category><category><![CDATA[EDS]]></category><category><![CDATA[HSD]]></category><category><![CDATA[hEDS]]></category><category><![CDATA[mcas]]></category><pubDate>Tue, 11 Nov 2025 09:40:21 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/d4c8a2_9be514da3084477e882dce2112230158~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[What a day: Facing Disbelief: Neurodivergence, Hypermobility and the Science of 'Anxiety' in Children]]></title><description><![CDATA[S Glew, J Green, A Marsden, J Law What a day.... It was wonderful to meet a great team, one online, thoughtful, kind people who really care at the recent British Psychological Society annual conference. But it’s hard, moving from speaking to hundreds of people at a recent conference, people who listen, who follow what I’m explaining, who 'get' and 'connect' the importance of hypermobility, neurodivergence, anxiety, executive functioning and the health body/brain relationships that directly...]]></description><link>https://www.sedsconnective.org/post/what-a-day-facing-disbelief-neurodivergence-hypermobility-and-the-science-of-anxiety-in-childre</link><guid isPermaLink="false">6912c3cc91093697181615c1</guid><pubDate>Tue, 11 Nov 2025 05:21:00 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_8282dc5dd0114ea39d2409f12166994d~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Hypermobility GJH Extreme (EDS HSD)  and long Covid  ]]></title><description><![CDATA[People with EXTREME hypermobility appear to be at particularly high risk for long COVID]]></description><link>https://www.sedsconnective.org/post/hypermobility-gjh-extreme-and-long-covid-eds-hsd</link><guid isPermaLink="false">68cebdc4c792caf78b8b5e2b</guid><category><![CDATA[Research]]></category><category><![CDATA[Latest News]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[EDS]]></category><pubDate>Sat, 20 Sep 2025 14:53:44 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_8224bec62aa54a74aaa1040378e1e80f~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[What is MCAS what is the connection to hypermobility/ EDS? ]]></title><description><![CDATA[What is MCAS and the connection to hypermobility EDS HSD ?]]></description><link>https://www.sedsconnective.org/post/what-is-mcas-and-the-connection-to-eds-hsd</link><guid isPermaLink="false">68bc181db3939f3710584419</guid><category><![CDATA[health]]></category><category><![CDATA[Allergy]]></category><category><![CDATA[mcas]]></category><pubDate>Sat, 06 Sep 2025 15:23:20 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_d8b55e9aff9a459d9e3b86ad9a81c95c~mv2.png/v1/fit/w_1000,h_900,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Vitamins/supplements and Depression  ]]></title><description><![CDATA[Foods with magnesium In this large study on depression , researchers looked at the impacts of micronutrients on genetics and genetics on...]]></description><link>https://www.sedsconnective.org/post/vitamins-supplements-and-depression</link><guid isPermaLink="false">68b4a31d1d66bce9aa9e5c0f</guid><category><![CDATA[Research]]></category><category><![CDATA[Community]]></category><category><![CDATA[health]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[depression]]></category><category><![CDATA[Musculoskeletal]]></category><category><![CDATA[EDS]]></category><category><![CDATA[HSD]]></category><category><![CDATA[collagen]]></category><pubDate>Sun, 31 Aug 2025 19:50:39 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_732f662131f5494997fb4dc3a20e5980~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Research- Largest Global study hEDS HSD (hypermobility)]]></title><description><![CDATA[A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders]]></description><link>https://www.sedsconnective.org/post/research-largest-global-study-heds-hsd-hypermobility</link><guid isPermaLink="false">689799894d23f3b35414fec2</guid><category><![CDATA[Press Release]]></category><category><![CDATA[Latest News]]></category><category><![CDATA[neurodivergence]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[Featured Research]]></category><category><![CDATA[HSD]]></category><category><![CDATA[hEDS]]></category><pubDate>Sat, 09 Aug 2025 19:39:40 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_db4cb38b41a248249bbbbd0319ab204e~mv2.jpg/v1/fit/w_906,h_402,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +) ]]></title><description><![CDATA[Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences. ]]></description><link>https://www.sedsconnective.org/post/connective-bodies-brains-hypermobility-eds-jh-and-neurodivergence-autism-adhd</link><guid isPermaLink="false">68973ece5becbc17a55a0952</guid><category><![CDATA[Community]]></category><category><![CDATA[Research]]></category><category><![CDATA[health]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[Autism]]></category><category><![CDATA[ADHD]]></category><category><![CDATA[Neurodivergent]]></category><category><![CDATA[EDS]]></category><category><![CDATA[ADHD]]></category><category><![CDATA[Education]]></category><pubDate>Sat, 09 Aug 2025 12:41:15 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_918dd462040c4a7d900223874275f145~mv2.jpg/v1/fit/w_1000,h_921,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[ADHD AUTISM Dyspraxia Tourette's dyslexia in children or young people?]]></title><description><![CDATA[ADHD, Autism, Dyspraxia, Tourette’s, Dyslexia but what about the physical health in neurodivergent children and young people?]]></description><link>https://www.sedsconnective.org/post/adhd-autism-dyspraxia-tourette-s-dyslexia-in-children-or-young-people</link><guid isPermaLink="false">6890c87ffa7b483ed8b0da0d</guid><pubDate>Mon, 04 Aug 2025 20:20:21 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_7c70deda58f3468b800af394f5fb78ca~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[What Makes Lipoedema Fat Different? The role of the immune system]]></title><description><![CDATA[It's often misdiagnosed as obesity or lymphedema (fluid retention)]]></description><link>https://www.sedsconnective.org/post/lipoedema-and-the-immune-system</link><guid isPermaLink="false">6421bf08076d9daf1e0aeb5a</guid><category><![CDATA[Research]]></category><category><![CDATA[health]]></category><category><![CDATA[hypermobility]]></category><category><![CDATA[lipoedema]]></category><pubDate>Mon, 04 Aug 2025 16:09:38 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f3250a_cbf056a6c1064969a2e9147d92fe1af2~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item></channel></rss>