Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us - admin@infosussexeds.org.uk

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Support & wellness activities

One of the aims of SEDS is to offer support activities to improve physical and mental health of those suffering from EDS / hypermobility symptoms.

Feedback from members suggested we focus on horse related activities, pilates, bike riding, acupuncture and hydrotherapy, myofascial massage, equine therapy, craft therapy plus support meetings with speakers.

SEDS are always looking to build on the support and activities we offer

Find out more

If you are interested in any of these activities and the funding offered, join our member only facebook group Sussex Ehlers-Danlos Syndromes (SEDS).

Please note that activities are done at your risk and we will not held liable for any issues that may arise as a result of you undertaking any of them or for any liability that arises from the venues suggested.