Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

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Support & wellness activities

One of the aims of SEDS is to offer support activities to improve physical and mental health of those suffering from EDS / hypermobility symptoms.

Feedback from members suggested we focus on horse related activities, pilates, bike riding, acupuncture and hydrotherapy, myofascial massage, equine therapy, craft therapy plus support meetings with speakers.

How to apply for funding

If you are interested in any of these activities download this pdf and follow the instructions to apply.

Please note that activities are done at your risk and we will not held liable for any issues that may arise as a result of you undertaking any of them or for any liability that arises from the venues suggested in the PDF or above.