Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us - admin@infosussexeds.org.uk

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Come meet us

Saturday 11th 10.30 at the Park Barn Horsham

We are receiving a donation from the Sussex Police Property Act Fund and the Police are also kindly doing a talk on personal safety in and out of the home. Looking forward to it.


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