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May is the month to inform, educate, lobby and celebrate all about EDS and HSD

SEDS and Sussex (SEDS) Dazzlers have planned activities throughout the month

Each week we will have a theme and ask our members to share either a photo, a video, a poem, a story or anything else that will demonstrate the message of the theme on the Sussex (SEDS) Dazzlers group

At the end of each week the best post will win a copy of Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder by Claire Smith

Week 1

The theme will be Rainbow, each day there will be challenge based on a colour of the rainbow

Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

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