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Partner Organisations & Charities

Updated: Jun 17

SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education organisations, universities and transport organisations (including trains, ferries, airports and airlines). We are lucky to have some amazing organisations, charities and leading research universities we either participate or partner with in Sussex and nationally.


Latest - Proud to have SEDS mentioned in a leading research charity Versus Arthritis talking about the long journey to get a diagnosis of EDS/HSD. How she battled with many injuries and illnesses and losing her career.




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