Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us -

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Proud to have SEDS mentioned

SEDS mentioned as an example of local support in an article in Colostomy UK's magazine Tidings. The article was wriiten from experience garnered from members of SEDS and national charities to give an informed and informative look into

the world of EDS/HSD and stomas