Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

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SEDS Receives Magic Little Grant

We have received a Magic Little Grant through the partnership between Localgiving and the Postcode  Community Trust.   The Postcode Community Trust is a grant-giving charity funded entirely by players of People’s  Postcode Lottery.  Localgiving is the UK’s leading membership and support network for local charities and community  groups.

Our project received £500 towards: Funding to cover costs for EDS-aware pilates instructor to carry out pilates sessions for people with Ehlers-Danlos Syndromes.

Magic Little Grants webpage :

Localgiving and the Postcode Community Trust. Their website  addresses are: