Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

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Successful funding offer extended

Due to the 70% increase in our members applying for our funding support for activities, we have extended our offer until the end of February. Become a member of our facebook group

and take up our offer on a variety of activities, such as Pilates, physio, kayaking, horse riding etc.

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