Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us - admin@infosussexeds.org.uk

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Recognition and Awards

Because of the valued work done SEDS and board members are often recognised and rewarded for their activity in Sussex supporting people with EDS. This could be by building awareness, by working with official bodies to improve the care pathway, by supporting members in continuing to live fulfilled and varied lives, or simply by being there as support.