Webinars & Radio

Sophie Medlin Dietician - The Nutritional Management of Ehlers-Danlos Syndromes
Sophie Medlin of CityDieticians spoke to SEDS members on managing EDS with the help of nutrition and diet as well as discussing some of the issues that patients may have.
Assert Brighton & Hove Webinar - "Issues with our Tissues" by Jane Green
Originally aired on 31st March 2021, Jane Green spoke to Assert about Ehlers-Danlos Syndromes and symptomatic hypermobility in this insightful webinar. 
Dr Hazel Gowland - PGCE, MREHIS, FIFST, FRSPH - Food Allergy Risk Management

Dr Gowland has had a severe allergy to nuts and peanuts since early childhood and has survived a number of life-threatening reactions. A leading patient and consumer advocate, she was involved in shaping the achievements of the Anaphylaxis Campaign from its earliest days in 1994. 

Hazel supports and advises those at risk from severe food allergies, both through personal experience and professional expertise. Hazel investigates deaths and 'near misses' from food allergy, provides expert evidence and undertakes scientific, clinical and consumer research into why and how allergen avoidance may fail and how those at risk may be protected. In October 2018, Hazel completed a PhD - Food Allergy: innovation and advocacy, research and training to support and protect those at risk at Kingston University. In 2019 she was appointed a Visiting Fellow in the School of Medicine at Southampton University and a member of the SafeFood Knowledge Network Group. 

We were delighted to host Dr Gowland in this exclusive webinar on Saturday 13th March 2021 as she shared her expertise and stories with us. 

Brighton and Sussex Medical School - Hypermobility and neurodiversity

Jessica Eccles trained in medicine at University of Cambridge and University of Oxford, completing a BA in The History and Philosophy of Science, sparking a keen interest in philosophy of mind and brain-body interactions, and since graduation from medical school has pursued a combined academic clinical path at Brighton and Sussex Medical School. As an MRC Clinical Research Training Fellow she recently completed her PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms and is now a Clinical Senior Lecturer. She holds honorary clinical contracts with both Sussex Partnership NHS Foundation Trust and Brighton and Sussex University Hospitals NHS Trust. Jessica is also a Patron of Sussex Ehlers-Danlos and Hypermobility Support (SEDS) in Sussex.

Brighton and Sussex Medical School - Challenging Stereotypes: Novel perspectives on autism

Jane is an advocate for equality, diversity, human rights and co-production in education, health, employment, social care, police and transport (airport) accessibility for visible and invisible disabilities/conditions. She is a disabled, single parent of two adult children and carer to her eldest autistic child. Despite an unusual educational background she became the lead autism educationalist in the UK and Assistant Head Teacher but retired early in 2015 due to chronic ill health and disability. Diagnosed with Ehlers-Danlos Syndromes in 2015 followed by autism in 2016 after many years of disbelief. She still volunteers and advocates on various roundtables, charities and organisations as Trustee for CarersSWS, Social Care Institute of Excellence, SCIE co-production steering group and involved in DHSC Covid19 guidances and resources. She founded and is Chair of Sussex Ehlers-Danlos and Hypermobility Support group (SEDS) in Sussex. 

SEDS Webinar with Dr Tina Peers: 'The links between MCAS, Histamine Intolerance and EDS/HSD"

Proudly presenting guest speaker & new SEDS' Patron: Dr Tina Peers - Originally aired 30th November 2020

 

Dr Tina Peers – MBBS, DRCOG, DFSRH, FFSRH, MBCAM. In 2019, Dr Peers established The Menopause Consultancy, a specialist Menopause & Women’s Health Clinic and a centre of excellence to provide evidence-based care for women. Since the outbreak of COVID-19, Dr Peers has begun treating those suffering from long COVID, using her expertise in Histamine Intolerance and Mast Cell Activation Syndrome to inform treatment plans. She hopes to be able to help many of those suffering from this debilitating illness, as well as raising awareness and informing healthcare professionals about this potentially ground-breaking development. We are also delighted to announce her as a new SEDS’ Patron.

SEDS Webinar with Dr Jessica Eccles: "Ehlers-Danlos Syndromes & Hypermobility Symptoms & Conditions"

Proudly presenting guest speaker & SEDS Honorary Patron: Dr Jessica Eccles - Originally aired 9th November 2020

 

Dr Jessica Eccles MB ChB, Dip (French), MA, MSc, MRCPsych, PhD, PGCert HE Clinical Senior Lecturer and MQ Arthritis Research UK Fellow Dr Jessica Eccles, who trained in medicine completing a BA in The History and Philosophy of Science, sparking a keen interest in philosophy of mind and brain-body interactions and since graduation from medical school, has pursued a combined academic clinical path at Brighton and Sussex Medical School. She is an Honorary Consultant in Liaison Psychiatry. Dr Eccles is currently working on an Academy of Medical Sciences grant to explore neural connectivity in hypermobility using leading edge brain imaging techniques.

Youtube Videos:  Jane Green gives an overview of Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders  'Issues with our Tissues' for aucademy academic month
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Have a listen to Jane Green's BBC radio interview about Alert Cards: