Resources

EDS Symptom Tracker

 

EDS and HSD are complex, heritable connective tissue disorders.

There are many symptoms and criteria associated with getting diagnosis. 

Take a look at our Symptom Checker and discuss with your GP. 

 

 

 

 

 

Online Support Cards

 

Have you had issues using online webinars and conferencing with many others and not know when or how to have your turn to say something?    

 

SEDS in partnership with theautismconnected have designed and produced these cards. They are already being used by UK wide organisations/charities.  

 

Please email info@sussexeds.com if you would like a pack of 4 or larger batches.  

 

We suggest £5 including postage and packaging.  and they are free to download and use.  

 

 

Alert Cards

In the first lockdown we designed the alert cards.  For general issues, disabilitiesillness to be personalised by you.  Autism alert cards, essential companion cards and some for professional social care workers.  They have been hosted by the British Association of Social Workers and the Dept. of Health and Social Care Covid-19 Guidance Resources. They are downloadable for FREE on our Covid-19 page.

'What is Hypermobility?' Card for Children

 

'What is Hypermobility?' card designed by Jane Green to help children with Ehlers-Danlos Syndromes (EDS), Joint Hypermobility (JHS) and/or symptomatic Hypermobility, and allows their personalised needs to be clearly identified in order to be cared for.

This card can be downloaded and printed below and used by children who have any of the above mentioned conditions. 

 

 

 

 

Volunteering

SEDS has opportunities for volunteers to help with the running of it. There are lots of different roles available, which will suit the varying time that you are able to offer. If you are interested please complete the form, outlining what areas you have knowledge in so that we can assign the roles and help SEDS to keep progressing and carrying on the good work.

Volunteering Form

Counselling, mindfulness & help for anxiety and depression

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