Community support

We have a closed member Facebook group Sussex Ehlers-Danlos Syndromes   

An open Facebook page for interested people or professionals at  EDS/HSD at SEDSHSD 

We’re on Twitter too @SEDSHSD.

Also on Instagram Sussex_EDS

Contact us - admin@infosussexeds.org.uk

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Festive offer for our members


To give all our members the opportunity to have a festive treat and/or start the New Year in a positive way we are offering full funding on activities for December and January. This could be the suggested activities in our activities page or any other provider/venue that is EDS/HSD aware in Sussex

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